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Getting democratic case study

A large national organisation for people with a disabling medical condition has many self-help groups and some services such as advice and holiday homes. It is governed by about 50 trustees, most of whom are medical practitioners and professionals from health and social services. The general membership is mainly people with the condition, and they benefit from information about treatments, practical help and access to courses and self-help groups.

About five years ago a group of younger people with the condition set up their own group to discuss their particular experiences, under the umbrella of the main organisation. As this group grew, it began to question some of the policy decisions and priorities of the national organisation. Attempts to influence the trustees to consult more effectively with them and members in general failed. So did suggestions that more trustees should be people with direct experience of the condition.

Two years ago a new chief executive was appointed. He believed that the purpose of this kind of organisation should be to empower the people it sets out to help. He sympathised with the concerns of the younger service users and members and attempted to help them achieve changes in the way the organisation was governed.

At first he was rebuffed by some members of the governing body who felt that these changes were unnecessary and that he was overstepping his responsibilities in trying to influence who was elected to the governing body. After about two years of behind-the-scenes work and a working party to look at the constitution, proposals were accepted by the governing body. These reduced the size of the governing body by more than a half, adopted a policy stating that it would be desirable for a majority of the governing body members to have personal experience of the condition, and increased the number of nationally elected members.

Discussion questions

  • How important do you think it is that the majority of the governing body should have personal experience of the needs that the organisation aims to meet?
  • How would you weigh that alongside other things an organisation needs to do?
  • Is it part of the chief executive's responsibilities to influence the composition of the governing body?

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